Cystic Fibrosis Australia

Cystic Fibrosis organisations in Australia provide support and services to people with Cystic Fibrosis (CF) and their carers and families. This is complemented by a commitment to research and a quality improvement program focussing on improved clinical care for people with CF. For people living in country areas and live far from CF Clinics, the organisation endeavours to provide extra services such as: Visits to country areas by a social worker A freecall telephone service Educational seminars in country towns to provide up-to-date information on CF to doctors, allied health professionals, and the CF community. In the Newcastle area, counselling services are provided by our Community Worker who liaises closely with the Paediatric and Adult CF Clinics at the John Hunter Hospital. Practical home support is provided by our part-time Family Support Worker. Cystic Fibrosis New South Wales (CFNSW) provides the following services to individuals and families living with Cystic Fibrosis in NSW: Professional services Psychosocial assessment Counselling Formal and informal peer support Personalised advocacy Referrals to other organisations/agencies/services Practical assistance to navigate services, fill out applications, provide support letters Support programs Rural CF outreach clinics Regional outreach program Exercise self-management program New diagnosis support Travel nebuliser loan Health promotion education Hospital survival packs Client and family education Subsidy programs Emergency health subsidy Equipment subsidy Nutritional supplements subsidy VitABDECK subsidy IPTAAS - Hospital Travel and accommodations assistance Community support Community advocacy Research Inter-clinic meetings CFNSW information events Schools talks CF education sessions provided in/to the community Service events Sibling’s camps Mum’s wellbeing day/weekend Dad’s and mates break Parent lunches/dinners Peer support coffee mornings Communication and information Access to website/e-news/CF connections Access to experts and specialised Information (mini conventions, workshops, webinars, latest news on treatment, research, clinical trials and evidence base resources) Airway clearance training program For further information call 1800 650 614 or email admin@cfnsw.org.au.

Phone: 02 4960 2922